Navigating the health system with Ehlers-Danlos syndrome [PODCAST]


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We sit down with Denise Reich, a patient advocate, to explore her journey of navigating the healthcare system with Ehlers-Danlos syndrome (EDS). Denise shares her experiences from the initial mention of EDS during an ophthalmology appointment to finally receiving a formal diagnosis. We delve into the challenges she faced advocating for herself amidst dismissive attitudes from healthcare professionals and how the diagnosis of EDS has impacted her medical care. Denise sheds light on common misconceptions surrounding EDS, the negative perceptions within the medical community, and the steps needed to address them. Through her story, we uncover the importance of early recognition and validation of symptoms in patients, along with empowering messages for those struggling to have their concerns taken seriously.

Denise Reich is a patient advocate.

She discusses the KevinMD article, “Ehlers-Danlos syndrome: Overcoming doctor bias for a life-changing diagnosis.”

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